Plenary Session III: Saturday, October 20, 2018
"Partnering: The Oldest New Idea to Improve CF Care"
Speakers:
Maren Batalden, M.D., Kathryn Sabadosa, M.P.H., Melanie Abdelnour, Cynthia
George, R.N., M.S.N., F.N.P.
Central
to the management of cystic fibrosis are the relationships that people with CF
and their families build with their clinical care teams. As people with CF live
longer, their disease increases in complexity, making coordination and
individualized care ever more dependent upon these foundational relationships.
Actively partnering in health care is a learning process and although, highly
regarded, realizing and maintaining full partnership can be challenging. This
plenary will walk through the evolution of partnering, specifically in CF care
and more broadly in the context of health care and society, further thinking by
exploring the tensions impacting partnership, and highlight new strategies
supported by the CF Foundation, so that all people living with CF can better
balance their daily care while attaining personal goals. The plenary will end with
a panel discussion between an adult living with CF, a parent, and a healthcare
professional from the CF Foundation.
Plenary Session III: Saturday, November 4, 2017
"Partnering With the Community"
Speaker: Drucy Borowitz, M.D. and
Mary B. Dwight
This plenary session will focus on
ways people with CF and their families make a difference by partnering with the
larger community as advocates, by sharing their expertise on living life with
CF with their care center teams, and by supporting with each other through
virtual events and peer mentoring.