Archives

"Improving Outcomes of Infections in the Age of CFTR Modulators"

Speaker: Lisa Saiman, M.D., M.P.H.

In this session, Dr. Lisa Saiman will address the challenges of infections in people with CF and discuss why infections remain a major focus of the CF community, even in the era of effective CFTR modulators. She will provide an overview of CF infections, describe ongoing studies to increase our understanding of CF microorganisms and their optimal treatment, and discuss current strategies to develop new anti-infective agents to treat even the most difficult infections.

"Anti-inflammatories & Mucociliary Clearance Therapies in the Age of CFTR Modulators"

Speaker: Felix Ratjen, M.D., Ph.D.

This plenary will review the effect of CFTR dysfunction and CFTR restoration on both inflammation and mucociliary clearance in individuals with CF. Current and future therapeutic strategies to address inflammation and mucociliary clearance will be discussed, as well as how these strategies have potential to benefit both those patients using CFTR modulators and those not eligible for modulators.

"Partnering: The Oldest New Idea to Improve CF Care"

Speakers: Maren Batalden, M.D., Kathryn Sabadosa, M.P.H., Melanie Abdelnour, Cynthia George, R.N., M.S.N., F.N.P.

Central to the management of cystic fibrosis are the relationships that people with CF and their families build with their clinical care teams. As people with CF live longer, their disease increases in complexity, making coordination and individualized care ever more dependent upon these foundational relationships. Actively partnering in health care is a learning process and although, highly regarded, realizing and maintaining full partnership can be challenging. This plenary will walk through the evolution of partnering, specifically in CF care and more broadly in the context of health care and society, further thinking by exploring the tensions impacting partnership, and highlight new strategies supported by the CF Foundation, so that all people living with CF can better balance their daily care while attaining personal goals. The plenary will end with a panel discussion between an adult living with CF, a parent, and a healthcare professional from the CF Foundation.

Watch Session Recordings from NACFC 2018

Missed a session in Denver? Select session recordings with synched audio and slides are now available via the NACFC Content Library. Access to scientific sessions (i.e. plenaries, symposia, and workshops) is complimentary (account creation and log-in required). Short Course presentations are available for purchase on the site.

"Matching Medicines With Mutations"

Speakers:   Michael P. Boyle, M.D., FCCP and Philip J. Thomas, Ph.D.

Increasing numbers of people with CF now benefit from disease-altering small molecule therapies that target the basic defect in CFTR.  Use of these therapies has been extended recently using a combination of in vitro laboratory experiments to identify responsive mutations, and clinical trials to determine effect on clinical outcomes. This plenary will summarize how recent advances may allow in the near future over 90% of individuals with CF to benefit from therapies that target the basic defect in CFTR, including even those with the rarest disease causing mutations.

"Lung Transplantation: Challenges & Opportunities for Advanced CF Lung Disease"

Speakers:  Joseph Pilewski, M.D.

Plenary 2 will review the progression of CF lung disease and the option of lung transplant to treat advanced disease. The presentation will highlight the challenges associated with each phase of the transplant journey, including the referral to a transplant center, waiting for a transplant, undergoing the transplant procedure, and the care requirements and life after transplant.