• Plenary I: Wednesday, November 3, 2021

    Meeting the Moment: Lessons for a Changing World

    Speaker: Michelle Prickett, MD

    The COVID-19 pandemic continues to change how we approach our daily activities, access medical care, and prioritize values. During plenary one of NACFC 2021, Dr. Michelle Prickett will reflect on the lessons we are learning throughout the care center network to make CF care stronger, building on a foundation of trust to test new approaches. As a CF physician on the front lines treating ICU patients with COVID-19, Dr. Prickett offers a unique perspective on the importance of communication and agility to adapt to a changing medical landscape. She will highlight shifts in clinical focus in the context of highly effective modulators, equity in health care, and the integration of technology in the evolution of CF care.

    Topics: Health Outcomes, Personalized Medicine, Care Model, Plenary
  • Plenary Session III: Saturday, November 2, 2019

    "Evolution of CF Care: Innovation & Impact"

    Speaker: Peter Mogayzel, M.D., Ph.D.

    In this session, Dr. Peter Mogayzel walks us through past challenges and how our care model has met those challenges and built upon what we've learned to prepare for the future. As we enter a new era of therapeutics, now is the moment to consider what should shape how CF care evolves to meet the changing needs of people with CF and their families. Following his presentation, Sue Sullivan, RN, from Oregon Health & Science University; Terri Laguna, MD, MSCS, from Ann and Robert H. Lurie Children's Hospital of Chicago; and Cindy Brown, MD, of Indiana University, join Dr. Mogayzel for a panel discussion about the factors that should influence how CF clinical care evolves to support the needs of everyone with CF.

    Topics: Health Outcomes, Care Model, Plenary
  • Plenary Session III: Saturday, October 20, 2018

    "Partnering: The Oldest New Idea to Improve CF Care"

    Speakers: Maren Batalden, M.D., Kathryn Sabadosa, M.P.H., Melanie Abdelnour, Cynthia George, R.N., M.S.N., F.N.P.

    Central to the management of cystic fibrosis are the relationships that people with CF and their families build with their clinical care teams. As people with CF live longer, their disease increases in complexity, making coordination and individualized care ever more dependent upon these foundational relationships. Actively partnering in health care is a learning process and although, highly regarded, realizing and maintaining full partnership can be challenging. This plenary will walk through the evolution of partnering, specifically in CF care and more broadly in the context of health care and society, further thinking by exploring the tensions impacting partnership, and highlight new strategies supported by the CF Foundation, so that all people living with CF can better balance their daily care while attaining personal goals. The plenary will end with a panel discussion between an adult living with CF, a parent, and a healthcare professional from the CF Foundation.

    Topics: Health Outcomes, Treatment, Care Model, Observational Research, Plenary
  • Plenary Session III: Saturday, November 4, 2017

    "Partnering With the Community"

    Speaker: Drucy Borowitz, M.D. and Mary B. Dwight

    This plenary session will focus on ways people with CF and their families make a difference by partnering with the larger community as advocates, by sharing their expertise on living life with CF with their care center teams, and by supporting with each other through virtual events and peer mentoring.  

    Topics: Health Outcomes, Treatment, Care Model, Observational Research, Plenary
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