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- Plenary Session III: Saturday, October 20, 2018
"Partnering: The Oldest New Idea to Improve CF Care"
October 20, 2018
Central to the management of cystic fibrosis are the
relationships that people with CF and their families build with their clinical
care teams. As people with CF live longer, their disease increases in
complexity, making coordination and individualized care ever more dependent
upon these foundational relationships. Actively partnering in health care is a
learning process and although, highly regarded, realizing and maintaining full
partnership can be challenging. This plenary will walk through the evolution of
partnering, specifically in CF care and more broadly in the context of health
care and society, further thinking by exploring the tensions impacting
partnership, and highlight new strategies supported by the CF Foundation, so
that all people living with CF can better balance their daily care while
attaining personal goals. The plenary will end with a panel discussion between
an adult living with CF, a parent, and a healthcare professional from the CF
Foundation.
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